babyreview 2

Welp, October came and went, huh?! I can't believe the entire month passed us by and I didn't log a single blog post. October is, after all, Down Syndrome Awareness Month . On one hand, I feel guilty for not having posts ready to share as a way to advocate for Baker and raise awareness. It's my duty as his mom to do so, right?! On the other hand, we are busy l i v i n g  l i f e. And that life, thanks to work and everything that comes along with three kids, is busy so the old blog gets neglected. Don't worry, though. I'm still a serial poster over on  Instagram and Facebook so follow along there if you want to see just how normal our life really is. I'm always up for answering questions so be sure to ask if you want to know something but hopefully I'm doing him justice and advocating for him all day long by making sure he's treated like everybody else in our home. Making sure he knows and everyone around us knows that he belongs. Baker has Down syndro...

Finally getting around to posting some photos from Baker's little birthday party on the old, neglected blog. I shared some of these on Instagram , too. We hosted some family for the day and it turned out to be a pretty good afternoon celebrating our superhero! I decided last minute that we needed a "theme" so the superhero trend was a no brainer. We had everyone representing: Thor, The Justice League, Wonder Woman, Captain America and our very own Superman. I was so impressed with Baker, he was totally into his gifts and all of the wrapping paper that came with them. He had plenty of helpers and sat back to take it all in. He's still working on self feeding but didn't have any issues getting after that cake. Not sure how much he ate but he managed to make quite the mess! We had the best time celebrating you, baby boy! We love you big time.

I have every intention of blogging more than once a month but this thing called life keeps getting in the way! We've had a BIG month over here... BAKER IS ONE! Can you believe it?! I cannot. Hands down, fastest year of my life even with all we had going on with this boy. He kept us busy and the days/weeks/months seemed to fly by. At the same time, he just didn't seem like a one-year-old to me. I know it's because he's not doing everything typical kids his age are doing - he seemed so babyish to me still - but the calendar doesn't lie. He's officially a year old. Shortly after he turned 11 months old , he started taking Vigabatrin to help control his infantile spasms. After a week or so on that medication, we stopped visibly seeing spasms. It was wonderful. He quickly came back to us and started smiling all day long, interacting with us on another level, actually PLAYING with toys. He was a different kid! That gave us hope that this medication was working but I c...

E L E V E N  M O N T H S He'll be ONE in a few weeks and like always, I'm left wondering how this is even possible. It went faster than ever, even the moments where we were barely hanging on by a thread. We've had a lot going on this past year and this last month was no different. Infantile spasms have consumed our days (and nights) as Baker continues to receive treatment to get rid of the seizures. He has 3 ACTH injections left and started Vigabatrin, an anti-seizure medication last week. Once he's up to the full dose of the new medication, he'll have another EEG to see if it's working. While it does seem like the spasms have drastically decreased since starting the vigabatrin, I'm hesitant to say for sure they're gone. We need the EEG to tell us that; infantile spasms cause  hypsarrythmia which are abnormal, chaotic brain waves. Once the EEG comes back clean, we can breath a major sigh of relief. Until then, I'm a little on edge and possibly going...