babyreview 2

E L E V E N  M O N T H S He'll be ONE in a few weeks and like always, I'm left wondering how this is even possible. It went faster than ever, even the moments where we were barely hanging on by a thread. We've had a lot going on this past year and this last month was no different. Infantile spasms have consumed our days (and nights) as Baker continues to receive treatment to get rid of the seizures. He has 3 ACTH injections left and started Vigabatrin, an anti-seizure medication last week. Once he's up to the full dose of the new medication, he'll have another EEG to see if it's working. While it does seem like the spasms have drastically decreased since starting the vigabatrin, I'm hesitant to say for sure they're gone. We need the EEG to tell us that; infantile spasms cause  hypsarrythmia which are abnormal, chaotic brain waves. Once the EEG comes back clean, we can breath a major sigh of relief. Until then, I'm a little on edge and possibly going...

Our Baker boy. Keeping us on our toes from day one . Well, before day one , actually. From the moment we learned about Baker's existence, life has become a whirlwind of sorts and we've come to learn how to roll with the punches. The last few weeks have been no exception. Baker has added a few more specialists to his medical binder and doctor appointments to his calendar along with a diagnosis for infantile spasms . Infantile spasms are certain types of seizures that appear in babies, usually showing up around 4-8 months of age. IS is rare (only 1,200 or so cases are diagnosed a year), hard to recognize and is a very serious condition. The longer it goes undiagnosed and untreated, the worse a child may do developmentally. For someone like Baker, who is already delayed when it comes to gross motor skills and could potentially face his own struggles when it comes to learning and cognitive abilities, the thought of him having damaging seizures on top of everything else was (and is...

Time to recap another month with our boy! HOW IS HE ALMOST ONE!? I'm not sure how much he weighs or how tall he is - I think we've gone a full month without any medical appointments! He has bi-weekly checks for his helmet but they don't take height/weight at that office. If I had to guess, I'd say he's close to 18 pounds. I still feel like he's a shorty and hasn't really grown much length-wise this month. His head continues to round out nicely! I'm reallllllly hoping we can ditch the helmet sooner rather than later but he's not growing entirely too fast so I think we're stuck with it for a few more months. That thing hits me in the face on a daily basis and the poor kid gets so sweaty. I'd say Baker's biggest accomplishment this month was really getting the hang of drinking out of a straw. This is something I don't think I even thought about with the girls because, like a lot of things, they just seemed to "get it" from the...